About Us - Rheum4U

About Rheum4U

Founded in 2016, Rheum4U is an initiative undertaken by clinicians and researchers within the Division of Rheumatology to create an inflammatory arthritis registry that captures patient demographics, treatments, and outcomes over the continuum of care. It is the largest registry of its kind in Alberta.

The platform, a web-based tool designed for use by patients and health care providers, supports clinical care and collects data for research and quality improvement. The purpose of the registry is to:

Improve care for inflammatory arthritis patients

Better understand how the disease develops and progresses

Improve treatments and therapies

Help use healthcare resources more efficiently

Our vision

To conquer inflammation and arthritis to prevent disability. 

Our mission

We will optimize patient outcomes through early rapid disease recognition, fostering discovery, and initiating precision therapies, to accelerate new knowledge into practice. 

Meet our team

Operations Committee:

  • Dr. Dianne Mosher 
  • Dr. Susa Benseler
  • Dr. Deborah Marshall

Support Team:

  • Inelda Gjata, Project Manager

  • Martina Stevenson, Research Coordinator


Newsletters

Below you'll find digital versions of our previous newsletters. 

June 2020

June 2020

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November 2020

November 2020

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March 2021

March 2021

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June 2022

June 2022

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November 2022

November 2022

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Publications

Rheum4U has supported the following publications:

Year Month Type Title Location Author(s) Presenter PMID
2017 February Poster Rheum4U - Preliminary Results of Piloting a Web-based Tool for Quality Improvement in Rheumatology Clinics   Barber CE, MacMullan P, Barnabe C, Marshall DA, Benseler S, Twilt M, Hazlewood G, Fifi-Mah A, Emrick A, Sandhu N, Stevenson M, Ziouzina O, Mosher D    
2019 May Manuscript Rheum4U: Development and testing of a web-based tool for improving the quality of care for patients with rheumatoid arthritis Clinical and Experimental Rheumatology Barber CEH, Sandhu N, Rankin J, MacMullan P, Marshall DA, Barnabe C, Hazlewood GS, Emrick A, Stevenson M, Then K, Benseler S, Twilt M, Mosher D   30183602
2019 Spring Article Rheum4U The Journal of the Canadian Rheumatology Association Mosher D    
2019 November Presentation Developing a patient-centered framework for measuring, monitoring and optimizing RA care: Report on the findings of the Balanced Scorecard Project for RA patients. AAC Final Annual Meeting, Toronto, Ontario   Barber CE  
2019 October Presentation   Rheumatology Grand Rounds, Calgary   Barber CE  
2019 November Poster Testing Rheumatoid Arthritis Performance Measures to Optimize Treat to Target Strategies American College of Rheumatology Annual Meeting, Atlanta, GA Barber CEH, Mosher DP, Hazlewood GS, MacMullan P, Barnabe CCM, Bohm V, Rankin J, Homik J, English K, Tsue K, Pan B, Stevenson M, Sandhu A, Brose A, Martin WO, Durand C, Jung M, Lacaille D. Barber CE  
2020 September Manuscript Implementation and Evaluation of Audit and Feedback for Monitoring Treat to Target (T2T) Strategies in Rheumatoid Arthritis Using Performance Measures Rheumatology and Therapy Barber CE, Mosher D, Dowling D, Bohm V, Solbak N, MacMullan P, Pan B, Barnabe C, Hazlewood G, Then K, Marshall D, Rankin J, Li L, Tsui K, English K, Homik J, Spencer N, Hall M, Lacaill D    
2021 February Poster The Rheum4U Precision Health Registry Platform: Enabling quality care for patients with inflammatory arthritis during the COVID-19 pandemic in two outpatient rheumatology clinics. CRA Dianne Mosher, Susanne Benseler, Marinka Twilt, Paul MacMullan, Inelda Gjata, Namneet Sandhu, Martina Stevenson, Andrea Brose, Damilola Omotajo, Deborah A Marshall on behalf of the Rheum4U Team Dianne Mosher  
2021 February Poster Patient characteristics and treatment patterns across four Canadian rheumatoid arthritis cohorts CRA Glen Hazlewood, Claire Bombardier, XiuYing Li, Mohammad Movahedi, Dianne Mosher, Vivian Bykerk, Orit Schieir, Denis Choquette, Louis Coupal, Sasha Bernatsky, Nicole Spencer, Claire Barber, on behalf of CATCH, OBRI, Rheumadata and Rheum4U    
2021 August Manuscript Heterogeneity in patient characteristics and differences in treatment across four Canadian rheumatoid arthritis cohorts The Journal of Rheumatology Glen S Hazlewood, Claire Bombardier, Xiuying Li, Mohammad Movahedi, Denis Choquette, Louis Coupal, Vivian Bykerk, Orit Schieir, Dianne Mosher, Deborah A Marshall, Sasha Bernatsky, Nicole Spencer, Dawn P Richards, Laurie Proulx, Claire E H Barber, OBRI, RHEUMADATA, CATCH investigators and The Rheum4U Team   34334357
2022 February Poster Key factors for the development and implementation of a patient dashboard in rheumatology: review of literature. CRA Pirhalova T, Sandhu N, Benseler S, Marshall D, Gjata I, Twilt M, Stevenson M, Olaosebikan O, Mosher D, on behalf of the Rheum4U Team Dianne Mosher  
    Poster The relationship between disease activity measures and work productivity and activity impairment in patients with Rheumatoid Arthritis in the Rheum4U Precision Health Registry patient cohort CRA Marshall, DA, Sandhu N, Benseler S, Twilt M, Guigue A, Gjata I, Stevenson M, Mosher D, on behalf of the Rheum4U Team Dianne Mosher