PaCES Publications

Published papers

  1. Ahmed S, Simon J, Biondo P, Slobogian V, Shirt L, King S, Paolucci A, Pabani A, Hao D, Bossio E, Cross R, Monds T, Nieuwenhuis J, Sinnarajah A. Acceptability of automatic referrals to supportive and palliative care by patients living with advanced lung cancer: qualitative interviews and a co-design process. Res Involv Engagem 2024; 10: 36. Published online 2024 Apr 2. doi: 10.1186/s40900-024-00568-0
  2. Hussein S, Lim CA, Manokaran T, Kassam S, Earp M, Tang PA, Karim S, Biondo P, Watanabe SM, Sinnarajah A, Tan A, Simon J. Colorectal Cancer Patients' Reported Frequency, Content, and Satisfaction with Advance Care Planning Discussions. Curr Oncol 2024 Feb 26;31(3):1235-1245. doi: 10.3390/curroncol31030092.
  3. Paolucci A, Nielssen I, Tang KL, Sinnarajah A, Simon JE, Santana MJ. The impacts of partnering with cancer patients in palliative care research: a systematic review and meta-synthesis. Palliat Care Soc Pract 2022 Oct 18;16:26323524221131581. doi: 10.1177/26323524221131581. Erratum in: Palliat Care Soc Pract. 2023 Jul 6;17:26323524231185693. PMID: 36274787; PMCID: PMC9583219.
  4. Ahmed S, Naqvi SF, Sinnarajah A, McGhan G, Simon J, Santana MJ. Patient & caregiver experiences: qualitative study comparison before and after implementation of early palliative care for advanced colorectal cancer. Can J Nurs Res 2022 Mar 7:8445621221079534. doi: 10.1177/08445621221079534. Online ahead of print. 
  5. Tan A, Spice R, Sinnarajah A. Family physicians supporting patients with palliative care needs within the patient medical home in the community: an appreciative inquiry study. BMJ Open 2021;11:e048667. doi: 10.1136/bmjopen-2021-048667
  6. Mracek J, Earp M, Sinnarajah S. Palliative home care and emergency department visits in the last 30 and 90 days of life: a retrospective cohort study of patients with cancer. BMJ Support Palliat Care 2021 Jun 29;bmjspcare-2021-002889. doi: 10.1136/bmjspcare-2021-002889.  Online ahead of print.
  7. Dunn S, Earp MA, Biondo P, Cheung WY, Kerba M, Tang PA, Sinnarajah A, Watanabe SM, Simon JE. Oncology clinicians’ challenges to providing palliative cancer care—a Theoretical Domains Framework, pan-cancer system survey. Curr Oncol 2021; 28(2): 1483-1494. Survey tool / Survey mapped to BCW & TDF
  8. Earp M, Cai P, Fong A, Blacklaws K, Pham TM, Shack L, Sinnarajah A. Hospital-based acute care in the last 30 days of life among patients with chronic disease that received early, late or no specialist palliative care: a retrospective cohort study of eight chronic disease groups. 
    BMJ Open 2021; 11(3): e044196. 
  9. Ahmed S, Naqvi SF, Sinnarajah A, McGhan G, Simon J, Santana M. Patient and caregiver experiences with advanced cancer care: a qualitative study informing the development of an early palliative care pathway. BMJ Support Palliat Care (in press).
  10. Booker R, Dunn S, Earp M, Sinnarajah A, Biondo P, Simon J. Perspectives of hematology oncology clinicians about integrating palliative care in oncology. Current Oncology 2020; 27(6):313-320.
  11. Earp MA, Sinnarajah A, Kerba M, Tang PA, Rodriguez-Arguello J, King S, Watanabe SM, Simon JE. Opportunity is the greatest barrier to providing palliative care to advanced colorectal cancer patients: a survey of oncology clinicians’ perceptions. Current Oncology 2018;25(5):e480-e485.
  12. Simon, J. Who needs palliative care? CMAJ 2018; 190(9).

Published abstracts

  1. Sinnarajah A, Akude P, Zarrabi M, Earp M, Biondo P, Fong A, Blacklaws K, Pakseresht M, Kaposhi B, Shack L, Watanabe S, Tang PA, Kerba M, Simon J. The PaCES Study: Cost effectiveness of an early palliative care intervention in patients with advanced colorectal cancer. JCO Oncol Practice 2023; 19(11_suppl): 20. 2023 ASCO Quality Care Symposium, October 27-28, 2023. 
  2. Pabani A, King S, Ahmed S, Shirt L, Slobogian V, Vig C, Hao D, Barbera LC, Kurien E, Santana M, Biondo P, Sinnarajah A, Simon J. Patient and caregiver-reported acceptability of an automatic phone call offering supportive and palliative care referral for advanced non-small cell lung cancer patients. J Clin Oncol 2022; 40(16_suppl): e24097. DOI:10.1200/JCO.2022.40.16_suppl.e24097. 2022 ASCO Annual Meeting, Chicago, Illinois, June 3-7, 2022. 
  3. Sinnarajah A, Watanabe S, Tang PA, Kerba M, Tan A, Earp M, Biondo P, Fong A, Blacklaws K, Bond C, Vandale J, Simon J. The PACES Study: A controlled before and after pragmatic trial of a cancer clinic–based intervention to increase early referral to specialist palliative care. J Clin Oncol 2022; 40(16_suppl): 6501. DOI:10.1200/JCO.2022.40.16_suppl.6501. 2022 ASCO Annual Meeting, Chicago, Illinois, June 3-7, 2022. 
  4. Sinnarajah A, Earp M, Biondo P, Piquette C, Vandale J, Tang PA, Kerba M, Watanabe S, Tan A, Simon J. The PaCES (Palliative Care Early and Systematic) Project: Impact of individual components of a multi-faceted intervention on early referral to specialist palliative care. J Clin Oncol 2022; 40(28_suppl): 199. DOI:10.1200/JCO.2022.40.28_suppl.199. 2022 ASCO Quality Care Symposium, Chicago, Illinois and online, September 30-October 1, 2022. 
  5. Nureen Sumar, Madalene Earp, Desiree Hao, Aynharan Sinnarajah. Palliative care as a predictor of healthcare resource use at end-of-life in adult Albertan lung cancer decedents between 2008-2015: A secondary data analysis. J Clin Oncol 2021; 39(15_suppl): e24009. DOI:10.1200/JCO.2021.39.15_suppl.e24009. 2021 ASCO Annual Meeting, June 4-8, 2021.  
  6. Sinnarajah A, Bond C, Tang P, Tan A, Biondo P, Karim S, Watanabe S, Kerba M, Simon J. Development and implementation of “Advanced Cancer Shared Care Letters” to improve shared care between oncologists and family physicians. Model-35. Support Care Cancer 2021; 29(Suppl 1): S103. MASCC/ISOO Annual Meeting on Supportive Care in Cancer, June 24-26, 2021.
  7. Sinnarajah A, Kassam S, Biondo P, Beaumont C, Watanabe S, Earp MA, Tang P, Simon J. Feasibility of collecting survey-based patient reported outcome measures (PROMs) from patients living with advanced cancer. Pallia-50. Support Care Cancer 2021; 29(Suppl 1): S198. MASCC/ISOO Annual Meeting on Supportive Care in Cancer, June 24-26, 2021.  
  8. Vandale J, Bond C, Biondo P, Simon J, Janzen C, Hagel J, Earp M, Shirt L, Fassbender K, Sinnarajah A. Is palliative care ready for early palliative care? A mixed methods account of an early and integrated palliative care initiative. P01-170. Palliat Med 2020; 34(1S): 102. European Association for Palliative Care 11th World Research Congress Online, October 7-9, 2020.
  9. Biondo P, Kassam S, Beaumont C, Earp M, Essue B, Longo CJ, Simon J, Watanabe SM, Fassbender K, Sinnarajah A. Characterizing the financial burden of advanced cancer: interim analysis of financial effects data from people living with advanced colorectal cancer. P02-065. Palliat Med 2020; 34(1S): 169. European Association for Palliative Care 11th World Research Congress Online, October 7-9, 2020. 
  10. Ahmed S, Naqvi F, Sinnarajah A, McGhan G, Santana M. Patient and caregiver experiences of advanced cancer care: a qualitative study. Curr Oncol 2020; 27(1): e64. CanPROS Scientific Conference 2019, Calgary, AB, November 13-15, 2019.
  11. Watanabe S, Bond C, Tan A, Tang P, Karim S, Kerba M, Biondo P, Simon J, Sinnarajah A. Development and implementation of “advanced cancer shared care letters” to improve shared care between oncologists and family physicians. J Clin Oncol 2019; 37(suppl 31; abstr 37). 2019 Supportive Care in Oncology Symposium, San Francisco, CA, October 25-26, 2019.
  12. Kerba M, Kassam S, Beaumont C, Biondo P, Earp M, Tang PA, Simon J, Watanabe S, Sinnarajah A. Living with advanced colorectal cancer: How prepared are informal caregivers to care for their loved ones? J Clin Oncol 2019; 37(suppl 27): 179. ASCO Quality Care Symposium, San Diego, CA, September 6-7, 2019.
  13. Kerba M, Kassam S, Beaumont C, Biondo P, Earp M, Tang PA, Simon J, Watanabe S, Sinnarajah A. Feasibility of collecting survey-based patient-reported outcome measures (PROMs) from patients living with advanced cancer: Emerging findings from the Living with Colorectal Cancer study. J Clin Oncol 2019; 37(suppl 27): 207. ASCO Quality Care Symposium, San Diego, CA, September 6-7, 2019.
  14. Sinnarajah A, Earp M, Cai P, Fong A, Blacklaws K, Karim S, Cheung WY, Kerba M. Impact of specialist palliative care delivered over three months prior to death on a colorectal cancer patient's risk of experiencing aggressive end-of-life care. J Clin Oncol 2019; 37(15_suppl): 6614. 2019 ASCO Annual Meeting, Chicago, IL, May 31-June 4, 2019.
  15. Sinnarajah A, Earp M, Murray A, Wu J. Association of Specialist Palliative Care with Health Care Resource Use at End of Life in Cancer Patients. Palliat Med 2019; published online May 2019: 152. 16th World Congress of the European Association for Palliative Care (EAPC), Berlin, Germany, May 23-25, 2019.
  16. Watanabe S, Dunn S, Earp M, Shirt L, Biondo P, Cheung W, Kerba M, Tang PA, Sinnarajah A, Simon J. Barriers to providing palliative care to patients with advanced cancer: A province-wide survey of oncology clinicians' perceptions. J Clin Oncol 2018; 36(34_suppl): 88. 2018 Palliative and Supportive Care in Oncology Symposium, San Diego, CA, November 16-17, 2018.
  17. Bond C, Meller M, Biondo P, Earp M, Sinnarajah A, Tang P, Tan A, Kerba M, Galloway L, Baumgarten C, Simon J. Building an Early Palliative Care Pathway for Advanced Colorectal Cancer Patients in Alberta: Identifying Current State Barriers and Gaps to Early Palliative Care. J Pain Symptom Manage 2018; 56(6): e136. 2018 International Congress on Palliative Care, Montreal, Quebec, October 2-5, 2018.
  18. Earp MA, Sinnarajah A, Kerba M, Tang PA, Rodriguez-Arguello J, King S, Watanabe SM, Simon JE. Palliative Care Early and Systematic (PaCES): Barriers to Providing Palliative Care to Advanced Colorectal Cancer Patients. A Survey of Oncology Clinicians Perceptions. J Pain Symptom Manage 2018; 56(6): e106–e107. 2018 International Congress on Palliative Care, Montreal, Quebec, October 2-5, 2018.
  19. Vandale J, Gray R, Raffin Bouchal S, Biondo P, Thiessen M, Angevine P, Woytkiw T, Tan A, Earp M, Sinnarajah A. Palliative Care Early and Systematic (PaCES): Assessing Patient and Caregiver Preferences for Early Palliative Care Delivery in Rural Alberta. J Pain Symptom Manage 2018; 56(6): e123–e124. 2018 International Congress on Palliative Care, Montreal, Quebec, October 2-5, 2018.
  20. Sinnarajah A, Earp M, Kerba M, Tang P, Watanabe S, Simon J. Palliative Care Early and Systematic (PaCES): Barriers to Providing Palliative Care to Advanced Colorectal Cancer Patients. A System-wide Survey of Gastrointestinal Oncology Clinicians’ Perceptions. Palliat Med 2018; 32:18. 10th World Research Congress of the European Association for Palliative Care (EAPC), Bern, Switzerland, May 24-26, 2018.
  21. Sharon Watanabe, Aynharan Sinnarajah, Madalene Earp, Patricia A. Tang, Marc Kerba, Jessica Simon. Palliative Care Early and Systematic (PaCES): A survey of colorectal cancer clinicians of barriers and facilitators to early palliative care integration. J Clin Oncol 2017; 35(31_suppl): 128.
    DOI:10.1200/JCO.2017.35.31_suppl.128. ASCO Palliative and Supportive Care in Oncology Symposium, San Diego, CA, October 27, 2017. 

Reports

  1. Sinnarajah A, on behalf of PaCES. Three reports on palliative care perspectives of family physicians, oncology clinicians and rural patients and caregivers of Alberta: Overall Executive Summary. Report submitted to Alberta Health, April 2018.