Publications & Reports

McCabe, E., Bishnu Bajgain, Hindmarch, W., Dyson, M., McNeil, D., Ortega, I., Arnold, P. D., Dimitropoulos, G., Clements, R., Zwicker, J. D., & Santana, M. J. (2024). Evaluating the implementation of measurement-based care in child and adolescent mental health services as part of a learning health system. Research Square (Research Square). https://doi.org/10.21203/rs.3.rs-5390833/v1

Marina Rosa Filezio, Sharma, N., Thull-Freedman, J., Fabio Ferri-de-Barros, & Santana, M. J. (2024). Enhancing informed consent through multimedia tools in pediatric spinal surgery: a comprehensive review. Frontiers in Pediatrics, 12. https://doi.org/10.3389/fped.2024.1357462 

Shainur Premji, Deborah Ann McNeil, Maria Jose Santana, & Spackman, E. (2024). Examining the Relationship Between Screening for Postpartum Depression and Associated Child Health Service Utilization and Costs: A Study Using the All Our Families Cohort and Administrative Data. Maternal and Child Health Journal. https://doi.org/10.1007/s10995-023-03831-0 

Kemp, K. A., Fairie, P., & Santana, M. J. (2024). Patient Experiences With Hospitalization Due to Diabetes in Alberta, Canada: A Cohort Study Using Survey and Administrative Data. Canadian Journal of Diabetes. https://doi.org/10.1016/j.jcjd.2024.10.005 

Unni, E., van Muilekom, M. M., Absolom, K., Bajgain, B., Haverman, L., & Santana, M. (2024). Educating patients about patient-reported outcomes—are we there yet? Journal of Patient-Reported Outcomes, 8(1). https://doi.org/10.1186/s41687-024-00745-5 

Lalani, S., Mathias, H., Heisler, C., Rohatinsky, N., Mirza, R. M., Kits, O., Zelinsky, S., Nguyen, G., Lakatos, P. L., Fowler, S., Rioux, K., & Jones, J. L. (2024). Improving access to inflammatory bowel disease care in Canada: The patient experience. Journal of Health Services Research & Policy. https://doi.org/10.1177/13558196241276979 

Roberts, A., Benterud, E., Santana, M. J., Engbers, J., Lorenz, C., Verdin, N., Pearson, W., Edgar, P., Adekanye, J., Javaheri, P., MacDonald, C. E., Simmons, S., Zelinsky, S., Caird, J., Sawatzky, R., Har, B., Ghali, W. A., Norris, C. M., Graham, M. M., & James, M. T. (2024). APPROACH e-PROM system: a user-centered development and evaluation of an electronic patient-reported outcomes measurement system for management of coronary artery disease. Journal of Patient-Reported Outcomes, 8(1). https://doi.org/10.1186/s41687-024-00779-9 

McCabe, E., Dyson, M., McNeil, D., Hindmarch, W., Ortega, I., Arnold, P. D., Dimitropoulos, G., Clements, R., Santana, M. J., & Zwicker, J. D. (2024). A protocol for the formative evaluation of the implementation of patient-reported outcome measures in child and adolescent mental health services as part of a learning health system. Health Research Policy and Systems, 22(1). https://doi.org/10.1186/s12961-024-01174-y 

‌ Fariba Aghajafari, Wall, L., Weightman, A. M., Ness, A., Lake, D., Anupindi, K., Gayatri Moorthi, Kuk, B., Santana, M., & Coakley, A. (2024). An exploration of COVID-19 vaccination models for newcomer refugees and immigrants in Calgary, Canada. Archives of Public Health, 82(1). https://doi.org/10.1186/s13690-024-01255-y 

‌ Lawal, O. A., Awosoga, O. A., Santana, M. J., Ayilara, O. F., Wang, M., Graham, M. M., Norris, C. M., Wilton, S. B., James, M. T., & Sajobi, T. T. (2023). Response shift in coronary artery disease. Quality of Life Research, 33(3), 767–776. https://doi.org/10.1007/s11136-023-03564-1 

Kalpana Thapa Bajgain, Mendoza, J., Naqvi, F., Fariba Aghajafari, Tang, K., Zwicker, J., & Santana, M.-J. (2024). Prioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique study. Journal of Patient-Reported Outcomes, 8(1). https://doi.org/10.1186/s41687-024-00694-z 

Santana, M.-J. (2023). Health-Related Quality of Life Measures and Lung Transplant Patients. Encyclopedia of Quality of Life and Well-Being Research, 3061–3067. https://doi.org/10.1007/978-3-031-17299-1_3841 

Kemp, K., Steele, B., Ahmed, S., Fairie, P., & Santana, M. (2024). Person-centred quality indicators are associated with unplanned care use following hospital discharge. BMJ Open Quality, 13(1), e002501. https://doi.org/10.1136/bmjoq-2023-002501 

Bergholtz, J., Wolf, A., Crine, V., Cleeve, H., Santana, M.-J., & Björkman, I. (2024). Patient and public involvement in healthcare: a systematic mapping review of systematic reviews – identification of current research and possible directions for future research. BMJ Open, 14(9), e083215. https://doi.org/10.1136/bmjopen-2023-083215 

Beaulieu, L., Bruce, M., Tiedemann, B., Chishti, R., Iqmat Iyiola, Penny, S., Leroux, C., Nielssen, I., Santana, M. J., & Castillo, E. (2024). Perspectives of parents with lived experience of cytomegalovirus infection, on universal newborn screening for congenital cytomegalovirus (cCMV) in Canada: a patient-led qualitative study. BMJ Paediatrics Open, 8(1), e002851–e002851. https://doi.org/10.1136/bmjpo-2024-002851 

Roberts, N., Zelinsky, S., Ahmed, S., McMullan, C., & Young, L. (2024). Patient engagement in quality of life research. Quality of Life Research. https://doi.org/10.1007/s11136-024-03727-8 

Rabi, S., Patton, M., Santana, M.-J., & Tang, K. L. (2024). Patient engagement in the development and implementation of navigation services: a scoping review protocol. BMJ Open, 14(8), e082666–e082666. https://doi.org/10.1136/bmjopen-2023-082666 

Sutherland, H., Sutherland, S., Rondeau, R., Minde, G., Nielssen, I., & Flemons, K. (2024). Supporting Indigenous youth to live with continued resilience, meaning and hope. Spectrum, 13. https://doi.org/10.29173/spectrum246 

Marshall, D. A., Nitya Suryaprakash, Bryan, S., Barker, K. L., MacKean, G., Zelinsky, S., McCarron, T. L., Santana, M. J., Moayyedi, P., & Lavallee, D. C. (2023). Measuring the Impact of Patient Engagement in Health Research: An Exploratory Study Using Multiple Survey Tools. Journal of the Canadian Association of Gastroenterology, 7(2), 177–187. https://doi.org/10.1093/jcag/gwad045 

Marshall, D. A., Nitya Suryaprakash, Lavallee, D. C., McCarron, T. L., Zelinsky, S., Barker, K. L., MacKean, G., Santana, M. J., Moayyedi, P., & Bryan, S. (2024). Studying How Patient Engagement Influences Research: A Mixed Methods Study. The Patient: Patient-Centered Outcomes Research. https://doi.org/10.1007/s40271-024-00685-8 ‌ 

Nielssen, I., Santana, M., Pokharel, S., Strain, K., Kiryanova, V., Zelinsky, S., Khawaja, Z., Khanna, P., Rychtera, A., & Ambasta, A. (2024). Operationalizing the principles of patient engagement through a Patient Advisory Council: Lessons and recommendations: Health Expectations. Health Expectations, 27(1), 1–12. https://doi.org/10.1111/hex.13909 

Ambasta, A., Holroyd-Leduc, J. M., Pokharel, S., Mathura, P., Shih, A. W.-Y., Stelfox, H. T., Ma, I., Harrison, M., Manns, B., Faris, P., Williamson, T., Shukalek, C., Santana, M., Omodon, O., McCaughey, D., Kassam, N., & Naugler, C. (2024). Re-Purposing the Ordering of Routine Laboratory Tests in Hospitalized Medical Patients (RePORT): protocol for a multicenter stepped-wedge cluster randomised trial to evaluate the impact of a multicomponent intervention bundle to reduce laboratory test over-utilization. Implementation Science, 19(1). https://doi.org/10.1186/s13012-024-01376-6 

Fariba Aghajafari, Wall, L., Weightman, A., Ness, A., Lake, D., Anupindi, K., Gayatri Moorthi, Kuk, B., Santana, M., & Coakley, A. (2024). COVID-19 Vaccinations, Trust, and Vaccination Decisions within the Refugee Community of Calgary, Canada. Vaccines, 12(2), 177–177. https://doi.org/10.3390/vaccines12020177