View of Banff National Park - trees and mountains

Better Mobility Lab

**Updated Referral Information**

Unfortunately due to wait times exceeding 3 years and lack of physician and allied health personnel support, we are no longer accepting referrals for Hypermobility Spectrum Disorders or hypermobile subtype Ehlers-Danlos Syndrome. We know this is very disappointing for patients and physicians, but more support in the clinic is necessary at this time. This will hopefully be temporary, until we are able to establish a multidisciplinary care team in this clinic. This decision was not made lightly. Thank you for your understanding and patience.

If you would like to participate in any research studies on Hypermobility Spectrum Disorders or hypermobile subtype Ehlers-Danlos Syndrome, please click here.

If you would like to help fund a multidisciplinary clinic for these conditions, please click here.

What is the Connective Tissue Disorders Rehabilitation Clinic?

The Connective Tissue Disorders Rehabilitation Clinic at Foothills Medical Centre was developed to focus on assessment and management of the musculoskeletal consequences of conditions such as the Hypermobility Spectrum Disorders, the Ehlers-Danlos Syndromes, Marfan Syndrome, Loewy-Dietz Syndrome, Down Syndrome, Stickler Syndrome, and Familial Thoracic Aneurysm and Dissection syndromes, amongst others. Clinical and research trainees are active parts of this clinic to advance patient care and awareness of these conditions and their impacts.

The Grand Visions are:

  • to develop a multidisciplinary patient-informed centre for the assessment and management of inherited connective tissue disorders in Southern Alberta,
  • to build the research evidence for rehabilitating conditions that cause loose large and small joints, and
  • to educate clinicians from a variety of disciplines about the nuances of caring for patients with a variety of inherited connective tissue disorders

In order to do this, we need your support. Please click here or contact us if you are able to help with volunteer or financial support.

What Happens in the Clinic?

Dr. Manocha is a physiatrist (specialist doctor in Physical Medicine & Rehabilitation). Dr. Manocha’s role is to assist in the physical rehabilitation of the musculoskeletal (bone and joint) consequences of connective tissue disorders, particularly with regards to exercises, bracing, adaptive equipment, preparing for and recovering from surgery, preparing for pregnancy and the postpartum period, adapting hobbies/work/family life, and educating your other healthcare providers. Further, this is a teaching clinic. As such, medical students and medical residents (doctors and specialist doctors in training) may be involved in your care. We appreciate your help in teaching the next generation of doctors about connective tissue disorders.

For more information on what a physiatrist is, please click here.

Way-Finding

Please park your vehicle at Central Parking (Lot 1) and cross the street to reach the North Tower of the Main Building. Please enter from the North Entrance as there should be signage outside indicating that you are entering the Special Services Building. After entering the building using the revolving doors, continue walking towards the back of building passing the information's desk to your left and the cafeteria to your right. Once you have passed the corridors with the elevators and bathrooms, please take an immediate right into the first hallway and approach the reception desk for our clinic. Upon entering the Foothills Centre, you can also consult the front desk or volunteers in red vests to help you find your to our clinic.

For more information about way-finding, click here.

Resources for Patients, Doctors, and Researchers: Hypermobility Spectrum & Ehlers-Danlos Syndromes

The following educational websites are provided for general guidance. We do not take responsible for site content. Site content does not constitute medical advice. Please speak to your own healthcare providers for further guidance. To suggest a resource, please email bettermobilitylab@ucalgary.ca.

Local Healthcare Providers (HSD/hEDS)

These individuals have been recommended by other patients, but have not been personally vetted by Dr. Manocha.

  • Kinesiologists:
    • Kalindra Walls
  • Massage Therapists:
    • Christa Powers, Health Tree Wellness Centre
  • Physical Therapists:
    • Mercedes Eustergerling, Vida Health and Wellness
    • Shilpa Kumar, Naturally Balanced
    • Christine MacSween, Vida Health and Wellness
    • Rebecca Margel, Fix Physio
  • Prolotherapy:
    • Dr. Martin Breton, Infini Health
    • Eric Lavoie, Nurse Practitioner, Evidence Sport and Spinal Therapy
  • You may wish to also look at this link, for healthcare providers who self-declare expertise in working with hypermobile individuals: Healthcare Professional Directory Archive - The Ehlers Danlos Society

Resources for Patients, Doctors, and Researchers: Other Conditions

Marfan, Loeys-Dietz, Familial Aortic Aneurysm, and Stickler Syndromes

The following educational websites are provided for general guidance. We do not take responsible for site content. Site content does not constitute medical advice. Please speak to your own healthcare providers for further guidance. To suggest a resource, please email bettermobilitylab@ucalgary.ca.

 

General Patient Resources