Better Mobility Lab
What is it?
A patient-oriented research education day that aims to:
1) Build a collaborative community amongst people living with Hypermobile Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS), their allies, clinicians, and researchers
2) Share information from leading clinicians/researchers locally, nationally, and internationally
3) Help patients drive future research and clinical projects related to HSD/hEDS in Southern Alberta. There will be a short session exploring how we can develop an integrated multidisciplinary clinic in Calgary for patients and families living with HSD/hEDS
This year, we are pleased to announce that guest speakers Dr. Nimish Mittal (University of Toronto) and Dr. Brad Tinkle (Peyton Manning Children's Hospital) will be joining us. In addition, researchers from the University of Calgary will be sharing their work. Check out their bios below!
Who is it for?
We are organizing the event primarily for people living with HSD/hEDS. However, friends, family members, caregivers, students, researchers, and clinicians are also welcome to attend, as are people living with other types of connective tissue disorders.
When is it?
Saturday, November 16, 2024 - from 9 am to 1 pm Mountain Time
Where will it be?
This will be a hybrid event available through 1 of 2 methods:
- Online
- A secure link will be sent to all interested participants who register for the event
- Please register as soon as possible so we can anticipate AV needs
- In-person
- Foothills Hospital Auditorium
- Foothills Medical Centre, 1403 29 Street NW, Calgary, AB, T2N 4N2
- Map: https://www.albertahealthservices.ca/assets/info/park/if-pmap-foothills-medical-centre.pdf
- Details on the room will be emailed to all interested participants who sign up for the in-person event
- Masks will be available
- Refreshments and lunch will be provided
- Please register as soon as possible so we can anticipate food requirements
- Foothills Hospital Auditorium
Agenda
- 8:45 AM - Doors Open and Check- In
- 9:00 AM - 9:20 AM - Opening Remarks, Dr. Ranita Manocha
- 9:20 AM - 10:00 AM - Presentation & Q& A, Dr. Nimish Mittal
- 10:00 AM - 10:10 AM - Wiggle Break, Sidd Parmar
- 10:10 AM - 11:00 AM - Presentations & Q&A: Abby Oldford, Dr. Kate Bourne, Donald Golden, Dr. David Hart
- 11:00 AM - 11:10 AM - Wiggle Break, Sidd Parmar
- 11:10 AM - 11:50 AM - Presentation & Q& A, Dr. Brad Tinkle
- 11:50 AM - 12:30 PM - Hypermobility Panel: Mercedes Eustergerling, Dr. Nimish Mittal, Jadyn Smith, Dr. Brad Tinkle
- 12:30 PM - 12:40 PM - Closing Remarks & Group Photo, Dr. Ranita Manocha
New This Year!
Based on audience feedback, we will be recording this year's presentations (where presenters have given us permission). Here are some news stories from last year's event:
- Motion brings pain with hypermobility disease. July 4, 2023.
- Event shares hope for hypermobility patients. May 3, 2023.
Special Thanks
A very special thank you to our primary sponsor, The Canerector Foundation and our secondary sponsor, The McCaig Institute for Bone and Joint Health. This event is being hosted by the Connective Tissue Disorders Rehabilitation Clinic (Foothills Medical Centre) & the Better Mobility Lab (University of Calgary).
Registration Link
Click here to register for the event:
https://go.ucalgary.ca/HopeforHypermobility2024_02RegistrationPageInPerson.html
Please register by Wednesday, November 13.
Dr. Brad T. Tinkle, MD, PhD
Hypermobility-related issues throughout the lifespan
Dr. Brad T. Tinkle, MD, PhD, is a clinical geneticist at Peyton Manning Children's Hospital. He serves mostly the connective tissue population including bone disorders, Marfan syndrome, hypermobility spectrum/Ehlers-Danlos syndromes, and other heritable connective tissue disorders. He currently sees 25-30 connective tissue patients weekly of all ages for one of the largest such clinics in North America.
Dr. Nimish Mittal, MBBS, MD, MSc
Navigating Life with Ehlers Danlos Syndromes: What the Evidence Says and How to Take Charge of Your Health
Dr. Nimish Mittal (MBBS, MD, MSc) is an Assistant Professor at the Temerty Faculty of Medicine, University of Toronto, Division of Physical Medicine and Rehabilitation. Dr. Mittal holds a cross-appointment in the Department of Anesthesiology and Pain Medicine and the Faculty of Kinesiology and Physical Education. He holds a Master’s in Health Research Methodology. Dr Mittal has an extensive experience of providing care in a variety of pain conditions. These include local joint and muscle pains to complex chronic pain conditions. Additionally, he is an expert in pains related to rare disorders like Sickle Cell Disease and Ehlers Danlos Syndromes. He is also a provider for several Canadian and international athletes. Dr. Mittal is a frequently invited speaker at multiple international conferences and has published more than 50 articles in national and international peer-reviewed journals. His research and clinical interests are focused on developing treatment pathways and models of care for multisystemic problems in hypermobility related complex connective tissue disorders. Dr. Mittal is passionate about the advancement of innovative clinical practices in chronic musculoskeletal joint pains with use of image guided (Ultrasound/X-Ray) injections.
Dr. Ranita Manocha, MD, MSc, FRCPC
The Connective Tissue Disorder Rehabilitation Clinic at Foothills Medical Centre
Dr. Ranita Manocha, MD, MSc is a Clinical Associate Professor in the Division of Physical Medicine & Rehabilitation (PM&R) Cumming School of Medicine and an Adjunct Associate Professor in the Faculty of Kinesiology at the University of Calgary. She received her BA in Cross-Disciplinary Studies at Western University, her MD at the University of British Columbia, and completed specialty training in PM&R and the Clinician Investigator Program with an MSc in Medical Biophysics at Western University. Dr. Manocha started the Connective Tissue Disorders Rehabilitation Clinic in 2019 at Foothills Medical Centre. She also runs the Better Mobility Lab, where her research team collaborates with patient partners to investigate hypermobile conditions, braces, walking aids, and ableism.
Dr. David Hart, PhD, FCAHS
Causes and Consequences of Joint Hypermobility: Will improved understanding lead to new
interventions?
David A. Hart, PhD, FCAHS, is a Professor in the Department of Surgery, Faculty of Kinesiology, and a Member of the McCaig Institute for Bone and Joint Health at the University of Calgary. He has a longstanding research interest in the growth, response to injury and degeneration of connective tissues of joints, with particular focus on sex differences in their regulation. Dr. Hart has published >500 articles in these and related areas over an extended career at the University of Calgary.
Kate Bourne, BSc, PhD, MD Candidate
hEDS and POTS: Updates from the Calgary Autonomic Research Lab
Dr. Kate Bourne, PhD is a medical student in the Leaders in Medicine program at the University of Calgary. Kate recently completed her PhD in Dr. Satish Raj's Lab where her research focused on the impacts of POTS on patients as well as non-pharmacological treatment options including compression garments. During her graduate work Kate held a CIHR Vanier Scholar Award. Before moving to Calgary, Dr. Bourne completed a Bachelor of Science at the University of Victoria (Canada).
Donald Golden, BHPE, CAT(C)
Impacts of Hormonal Changes During the Menstrual Cycle on Knee Joint in HSD and hEDS: Preliminary Findings
Donald Golden, BHPE, CAT(C) is pursuing an MSc in Medical Science (Specialization: Joint Injury and Arthritis) at the University of Calgary under the supervision of Dr. Ranita Manocha and Dr. David Hart. Donald's MSc thesis project is investigating the impacts of the menstrual cycle on the knees of women with joint hypermobility. His undergraduate research focused on the mechanisms of muscular weakness in Hypermobility Spectrum Disorders and hypermobile Ehlers-Danlos Syndrome. Donald is also a Certified Athletic Therapist, and his research interests include how physiology and biomechanics influence joint function and quality of life, especially following injury and in chronic or hereditary conditions.
Abby Oldford, BKin
Exploring Cognitive Performance in HSD and hEDS
Abby Oldford, BKin is a Research Assistant with the Better Mobility Lab at the University of Calgary working on a variety of joint hypermobility projects. She completed her undergraduate degree in Kinesiology at the University of Calgary and completed an Honour’s thesis exploring neuropsychological performance in individuals living with symptomatic joint hypermobility conditions.
Sidd Parmar
Wiggle Breaks
Sidd Parmar is a 3rd-year undergraduate student pursuing a BSc in Kinesiology with a minor in Psychology. Sidd currently works as a practicum student with the Better Mobility Lab working on the Hope for Hypermobility event. He is also involved in research at Alberta Children’s Hospital, working towards better understanding rheumatic diseases as well as looking at outcomes in kidney transplant patients with ANCA vasculitis.
Jadyn Smith, BCST
Hypermobility Panel - Patient
Jadyn Smith is completing her final year of her Bachelor of Education at the University of Calgary, and holds a Bachelor of Child Studies with a major in Child and Youth Care Counselling. Jadyn worked to support students with complex medical needs inside the classroom. She is currently engaged in research around Ehlers Danlos and hypermobility as a knowledge user.
Mercedes Eustergerling, BKin, MPT, MHM
Hypermobility Panel - Physiotherapist
Mercedes Eustergerling is a professional with a rich background in healthcare, education, and physiotherapy. Known for a hands-on, empathetic approach, she has worked closely with hypermobile individuals to improve their quality of life. Mercedes is now working in a non-clinical capacity and continues to support co-operative approaches that empower both individuals and providers.