Better Mobility Lab

Patient Resources on Inherited Connective Tissue Disorders

Dr. Manocha is a physiatrist (specialist doctor in Physical Medicine & Rehabilitation). Dr. Manocha’s role is to assist in the physical rehabilitation of connective tissue disorders, particularly with regards to exercises, bracing, adaptive equipment, preparing for and recovering from surgery, and educating your other healthcare providers.

Dr. Manocha aims to develop an interdisciplinary specialty Connective Tissue Disorders Rehabilitation Clinic but we need your support. We are looking for donors to make this vision happen. Please contact us if you are able to help, or check out our funding page for information on how to make a donation.

The following educational websites are provided for general guidance. We do not take responsible for site content. Site content does not constitute medical advice. Please speak to your own healthcare providers for further guidance.

 

  • Hypermobility Spectrum Disorders & the Ehlers-Danlos Syndromes
    • EDS Society
      • https://www.ehlers-danlos.com/
    • Hypermobility Syndromes Association
      • https://www.hypermobility.org/
    • The ILC Foundation
      • https://www.theilcfoundation.org/
    • Ehlers Danlos Society UK
      • https://www.ehlers-danlos.org/
    • Diet & EDS/HSD
      • https://tinyurl.com/hacmdeds
    • Dysautonomia Support Network
      • https://www.dysautonomiasupport.org/
    • The Mastocytosis Society of Canada
      • https://www.mastocytosis.ca/en/
  • Marfan, Loeys-Dietz, Familial Aortic Aneurysm, and Stickler Syndromes
    • Loeys-Dietz Syndrome Foundation Canada
      • http://www.loeysdietzcanada.org/
    • The Marfan Foundation
      • https://www.marfan.org/