Publications

Published papers

  1. Biondo PD, King S, Minhas B, Fassbender K, Simon JE. How to increase public participation in advance care planning: findings from a World Café to elicit community group perspectives. BMC Public Health 2019; 19(1): 679.

  2. Booker R, Simon J, Biondo P, Bouchal SR. Perspectives on advance care planning in haematopoietic stem cell transplantation: a qualitative study. Int J Palliat Nurs 2018; 24(3): 132-144.

  3. Ries N, Douglas M, Simon JE, Fassbender K. How do Lawyers Assist their Clients with Advance Care Planning? Findings from a Cross-Sectional Survey of Lawyers in Alberta, Canada. Alberta Law Review 2018; 55(3): 1-19.

  4. Shaw M, Hewson J, Hogan D, Raffin Bouchal S, Simon JE. Characterizing readiness for advance care planning from the perspective of residents, families and clinicians: an interpretive descriptive study in supportive living. Gerontologist. 2018; 58(4): 739-748.

  5. Kassam A, Douglas ML, Simon J, Cunningham S, Fassbender K, Shaw M, Davison SN. Behaviors in Advance Care Planning and ACtions Survey (BACPACS): development and validation part 1. BMC Palliat Care 2017; 16(1):56. doi: 10.1186/s12904-017-0236-6.

  6. Sudore RL, Heyland DK, Barnes DE, Howard M, Fassbender K, Robinson CA, Boscardin J, You JJ. Measuring Advance Care Planning: Optimizing the Advance Care Planning Engagement SurveyJ Pain Symptom Manage. 2017 Apr;53(4):669-681.e8. doi: 10.1016/j.jpainsymman.2016.10.367. Epub 2016 Dec 29.

  7. Biondo PD, Kalia R, Khan RA, Asghar N, Banerjee C, Boulton D, Marlett N, Shklarov S, Simon JE. Understanding advance care planning within the South Asian community. Health Expectations 2017; 20(5): 911-919.

  8. Hutchison LA, Raffin-Bouchal S, Syme CA, Biondo PD, Simon JE. Readiness to participate in advance care planning: a qualitative study of renal failure patients, families and healthcare providers. Chronic Illness 2017; 13(3):171-187.

  9. Ries N, Douglas M, Simon JE, Fassbender K. Doctors, lawyers and advance care planning: time for innovation to work together to meet client needs. Healthcare Policy 2016; 12(2): 13-18.

  10. Wrigley H, Standerwick L, Chan T, Ghosh S, Simon J. Patient Acceptance of Advance Care Planning Guidebook Distribution at Hospital Admission. Journal of Palliative Medicine 2016; 19(7): 690-691.

  11. Howard M, Bonham AJ, Heyland DK, Sudore R, Fassbender K, Robinson CA, McKenzie M, Elston D, You JJ. Measuring engagement in advance care planning: a cross-sectional multicentre feasibility studyBMJ Open. 2016 Jun 23;6(6):e010375. doi: 10.1136/bmjopen-2015-010375.

  12. Ries NM.  Lawyers and Advance Care and End of Life Planning: Enhancing Collaboration between Legal and Health Professions. Journal of Law and Medicine 2016; 23(4): 887-906.

  13. Simon JE, Ghosh S, Heyland D, Cooke T, Davison S, Holroyd-Leduc J, Wasylenko E, Howlett J, Fassbender K; Advance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO).  Evidence of increasing public participation in advance care planning: a comparison of polls in Alberta between 2007 and 2013BMJ Supportive & Palliative Care 2019; 9(2): 189-196.

  14. Biondo PD, Lee LD, Davison SN, Simon JE; Advance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO).  How healthcare systems evaluate their advance care planning initiatives: Results from a systematic review.  Palliative Medicine 2016; 30(8): 720-729. 

  15. Hagen NA, Howlett J, Sharma N, Biondo PD, Holroyd-Leduc J, Fassbender K, Simon J.  Advance Care Planning: identifying system-specific barriers and facilitators.  Current Oncology 2015; 22(4): e237-e245.

  16. Barbera L, Seow H, Sutradhar R, Chu A, Burge F, Fassbender K, McGrail K, Lawson B, Liu Y.  Quality indicators of end-of-life care in patients with cancer: what rate is right?  Journal of Oncology Practice 2015; 11(3): e279-87.

  17. Abdul-Razzak A, You J, Sherifali D, Simon J, Brazil K. 'Conditional candour' and 'knowing me': an interpretive description study on patient preferences for physician behaviours during end-of-life communication.  BMJ Open 2014; 4(10): e005653.

Published abstracts

  1. Javed S, Simon J, Naheed U. Adopting Recommendations from South Asian Community to Help Improve Their Understanding of Advance Care Planning Concept. Canadian Journal of General Internal Medicine 2018; 13(1): 9.

  2. Simon J, Shaw M, Biondo P, Holroyd-Leduc J, Davison S, Wasylenko E, Ghosh S, Howlett J, Hutchison L, Booker R, Marlett N, Raffin S, Fassbender K, Hagen N. From Knowledge-to-Action: A Synthesis of Barriers and Facilitators to Advance Care Planning Policy Implementation Across a Healthcare System. Journal of Pain and Symptom Management 2016; 52(6): e13.

  3. Fassbender K, Holroyd-Leduc J, Biondo P, Stalker M, Potapov A, Wasylenko E, Jajszczok M, Simon J, Hagen N. Identification of indicators to monitor successful implementation of advance care planning policies in Alberta: a Delphi study. Journal of Pain and Symptom Management 2016; 52(6): e13-14.

  4. Potapov A, Simon J, Fassbender K. Implementation and Evaluation of Electronic Medical Orders for Goals of Care and End of Life. Journal of Pain and Symptom Management 2016; 52(6): e106–107.

  5. Chiu A, Fassbender K. The economics of advance care planning. Journal of Pain and Symptom Management 2016; 52(6): e107.

  6. Biondo P, Kalia R, Khan R, Marlett N, Shklarov S, Fassbender K, Simon J. Understanding Advance Care Planning within the South Asian community: a Qualitative Patient Engagement Research Study. Palliative Medicine 2016; 30(6): NP48.

  7. Chiu A, Fassbender K. The Economics of Advance Care Planning. Palliative Medicine 2016; 30(6): NP146.

  8. Fassbender K, Holroyd-Leduc JM, Stalker M, Potapov A, Biondo P, Simon J, Hagen N. Identification and implementation of indicators to monitor successful uptake of Advance Care Planning in Alberta: a Delphi study. Palliative Medicine 2016; 30(6): NP192.

  9. Potapov A, Simon J, Fassbender K. Implementation and evaluation of electronic medical orders for goals of care and end of life. Palliative Medicine 2016; 30(6): NP193.

  10. Kassam A, Douglas M, Cunningham S, Fassbender K, Simon JE, Davison S. Using the think aloud method to evaluate instrument design for a new survey of patient engagement with advance care planning (ACP).  BMJ Support Palliat Care 2015;5(Suppl 2):A3-A4. 

  11. Lee LD, Biondo PD, Davison SN, Simon JE. How do healthcare systems evaluate advance care planning initiatives?  Results from a systematic review. BMJ Support Palliat Care 2015;5(Suppl 2):A4. 

  12. Douglas ML, Fassbender K, Simon JE, Biondo PD, Wasylenko E, Ries NM. Integrating advance care planning into legal practice: Development of an ACP legal toolkit.  BMJ Support Palliat Care 2015;5(Suppl 2):A34. 

  13. Ogilvie LN, Fassbender K, Wasylenko E, Holroyd-Leduc J, Davison S, Ghosh S, Howlett J, Simon JE. Advance care planning and goals of care designation: Health care provider perspectives. BMJ Support Palliat Care 2015;5(Suppl 2):A44. 

  14. Shaw M, Simon JE. Characterising readiness for advance care planning (ACP): An interpretive descriptive study in supportive living.  BMJ Support Palliat Care 2015;5(Suppl 2):A53.