Publications

Published papers

  1. Earp MA, Fassbender K, King S, Douglas M, Biondo P, Brisebois A, Davison SN, Sia W, Wasylenko E, Esau L, Simon J. Association between Goals of Care Designation orders and health care resource use among seriously ill older adults in acute care: a multicentre prospective cohort study. CMAJ Open 2022; 10(4): E945-E955; DOI: https://doi.org/10.9778/cmajo.20210155 
  2. King S, Douglas M, Javed S, Semenchuk J, Ghosh S, Dunne F, Moledina, A, Fassbender K, Simon J. Content of Serious Illness Care conversation documentation is associated with goals of care orders—a quantitative evaluation in hospital. BMC Palliative Care. 2022;21(1):116. https://doi.org/10.1186/s12904-022-01006-2.
  3. Xiao J, Simon J, Wityk Martin TL, Biondo P, Fassbender K. Advance care planning dashboard: quality indicators and usability testing. BMJ Support Palliat Care. 2021 Nov 23:bmjspcare-2021-003071. doi: 10.1136/bmjspcare-2021-003071. Epub ahead of print. PMID: 34815250.
  4. Singh, J., Simon, J., Ma, I., Dunne, F., Dugan, A., Wooller, K., Munene, P., Kobewka, D., Jayaraman, D., Swinton, M., Lagrotteria, A., Bernacki, R., & You, J. Implementation of the Serious Illness Care Program on Hospital Medical Wards: Methodology for a Multisite Quality Improvement Initiative. Canadian Journal of General Internal Medicine 2021; 16(3), e40-e59. https://doi.org/10.22374/cjgim.v16i3.484
  5. Lagrotteria A, Swinton M, Simon J, King S, Boryski G, Ma IWY, Dunne F, Singh J, Bernacki RE, You JJ. Clinicians' Perspectives After Implementation of the Serious Illness Care Program: A Qualitative Study. JAMA Netw Open. 2021 Aug 2;4(8):e2121517. doi: 10.1001/jamanetworkopen.2021.21517. PMID: 34406399; PMCID: PMC8374609.
  6. Douglas ML, Simon J, Davison SN, Biondo P, Ghosh S, Kassam A, Fassbender K. Efficacy of Advance Care Planning Videos for Patients: A Randomized Controlled Trial in Cancer, Heart, and Kidney Failure Outpatient Settings. Med Decis Making. 2021 Apr;41(3):292-304. doi: 10.1177/0272989X20985836. Epub 2021 Jan 15. PMID: 33451263.
  7. Heirali AA, Javed S, Damani Z, Kachra R, Valiani S, Walli AK, Couillard P, Geransar R, Simon J, Karim S. Muslim perspectives on advance care planning: a model for community engagement. Palliat Care Soc Pract. 2021 Feb 27;15:2632352421997152. doi: 10.1177/2632352421997152. PMID: 33718873; PMCID: PMC7917835.
  8. Fassbender K, Biondo P, Holroyd-Leduc J, Potapov A, Wityk Martin TL, Wasylenko E, Hagen NA, Simon J. Identification and operationalisation of indicators to monitor successful uptake of advance care planning policies: a modified Delphi study. BMJ Support Palliat Care. 2021 Feb 12:bmjspcare-2020-002780. doi: 10.1136/bmjspcare-2020-002780. Epub ahead of print. PMID: 33579796.
  9. Karim S, Lupichuk S, Tan A, Sinnarajah A, Simon J. Real World Implementation of the Serious Illness Care Program in Cancer Care: Results of a Quality Improvement Initiative. J Palliat Med. 2021 Jun;24(6):905-909. doi: 10.1089/jpm.2020.0680. Epub 2021 Jan 12. PMID: 33434442.
  10. Shaw M, Shaw J, Simon J. Listening to Patients’ Own Goals: A Key to Goals of Care Decisions in Cardiac Care. Can J Cardiol 2020; 36(7): 1135-1138.
  11. Shaw M, Raffin Bouchal S, Hutchison L, Booker R, Holroyd-Leduc J, White D, Grant A, Simon J. Influence of clinical context on interpretation and use of an advance care planning policy: a qualitative study. CMAJ Open 2020; 8(1): E9-15.
  12. Biondo PD, King S, Minhas B, Fassbender K, Simon JE. How to increase public participation in advance care planning: findings from a World Café to elicit community group perspectives. BMC Public Health 2019; 19(1): 679.
  13. Booker R, Simon J, Biondo P, Bouchal SR. Perspectives on advance care planning in haematopoietic stem cell transplantation: a qualitative study. Int J Palliat Nurs 2018; 24(3): 132-144.
  14. Ries N, Douglas M, Simon JE, Fassbender K. How do Lawyers Assist their Clients with Advance Care Planning? Findings from a Cross-Sectional Survey of Lawyers in Alberta, Canada. Alberta Law Review 2018; 55(3): 1-19.
  15. Shaw M, Hewson J, Hogan D, Raffin Bouchal S, Simon JE. Characterizing readiness for advance care planning from the perspective of residents, families and clinicians: an interpretive descriptive study in supportive living. Gerontologist. 2018; 58(4): 739-748.
  16. Kassam A, Douglas ML, Simon J, Cunningham S, Fassbender K, Shaw M, Davison SN. Behaviors in Advance Care Planning and ACtions Survey (BACPACS): development and validation part 1. BMC Palliat Care 2017; 16(1):56. doi: 10.1186/s12904-017-0236-6.
  17. Sudore RL, Heyland DK, Barnes DE, Howard M, Fassbender K, Robinson CA, Boscardin J, You JJ. Measuring Advance Care Planning: Optimizing the Advance Care Planning Engagement Survey.  J Pain Symptom Manage. 2017 Apr;53(4):669-681.e8. doi: 10.1016/j.jpainsymman.2016.10.367. Epub 2016 Dec 29.
  18. Biondo PD, Kalia R, Khan RA, Asghar N, Banerjee C, Boulton D, Marlett N, Shklarov S, Simon JE. Understanding advance care planning within the South Asian community. Health Expectations 2017; 20(5): 911-919.
  19. Hutchison LA, Raffin-Bouchal S, Syme CA, Biondo PD, Simon JE. Readiness to participate in advance care planning: a qualitative study of renal failure patients, families and healthcare providers. Chronic Illness 2017; 13(3):171-187.
  20. Ries N, Douglas M, Simon JE, Fassbender K. Doctors, lawyers and advance care planning: time for innovation to work together to meet client needs. Healthcare Policy 2016; 12(2): 13-18.
  21. Wrigley H, Standerwick L, Chan T, Ghosh S, Simon J. Patient Acceptance of Advance Care Planning Guidebook Distribution at Hospital Admission. Journal of Palliative Medicine 2016; 19(7): 690-691.
  22. Howard M, Bonham AJ, Heyland DK, Sudore R, Fassbender K, Robinson CA, McKenzie M, Elston D, You JJ. Measuring engagement in advance care planning: a cross-sectional multicentre feasibility study. BMJ Open. 2016 Jun 23;6(6):e010375. doi: 10.1136/bmjopen-2015-010375.
  23. Ries NM.  Lawyers and Advance Care and End of Life Planning: Enhancing Collaboration between Legal and Health Professions. Journal of Law and Medicine 2016; 23(4): 887-906.
  24. Simon JE, Ghosh S, Heyland D, Cooke T, Davison S, Holroyd-Leduc J, Wasylenko E, Howlett J, Fassbender K; Advance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO).  Evidence of increasing public participation in advance care planning: a comparison of polls in Alberta between 2007 and 2013.  BMJ Supportive & Palliative Care 2019; 9(2): 189-196.
  25. Biondo PD, Lee LD, Davison SN, Simon JE; Advance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO).  How healthcare systems evaluate their advance care planning initiatives: Results from a systematic review.  Palliative Medicine 2016; 30(8): 720-729. 
  26. Hagen NA, Howlett J, Sharma N, Biondo PD, Holroyd-Leduc J, Fassbender K, Simon J.  Advance Care Planning: identifying system-specific barriers and facilitators.  Current Oncology 2015; 22(4): e237-e245.
  27. Barbera L, Seow H, Sutradhar R, Chu A, Burge F, Fassbender K, McGrail K, Lawson B, Liu Y.  Quality indicators of end-of-life care in patients with cancer: what rate is right?  Journal of Oncology Practice 2015; 11(3): e279-87.
  28. Abdul-Razzak A, You J, Sherifali D, Simon J, Brazil K. 'Conditional candour' and 'knowing me': an interpretive description study on patient preferences for physician behaviours during end-of-life communication.  BMJ Open 2014; 4(10): e005653.

Published abstracts

  1. Simon J, Earp M, Fassbender K, King S, Biondo P, Brisebois M, Davison S, Wasylenko Eric. PP10.007 Associations between goals of care designation orders and health resource utilization: prospective cohort study of older, seriously Ill hospitalized adults. BMJ Support Palliat Care 2023; 13(Suppl 4): A31.
  2. Fassbender K, Goonasekera M, Biondo P, Simon J. BOS1c.004 Re-thinking advance care planning with a life journey and asset-based approach. BMJ Support Palliat Care 2023; 13(Suppl 4): A3-A4.
  3. Paolucci A, King S, Hu XY, Javed S, Au S, Ahluwalia P, Hughes J, Simon J. EP01.012 What conversation content do physicians document after implementation of serious illness conversations and what do they find useful? BMJ Support Palliat Care 2023; 13(Suppl 4): A55-A56.
  4. Karim S, Lupichuk SM, Tan A, Sinnarajah A, Simon J. Real-world implementation of serious illness care program (SICP) in cancer care. J Clin Oncol 2020; 38(15_suppl): e24112.
  5. Simon J, Fassbender K, Hagen N, Biondo P. How to optimally implement a formalized advance care planning framework throughout a complex, multi-sector healthcare system: key lessons from six years of study in Alberta, Canada. Palliat Med 2020; 34(1S): 14. 
  6. Fassbender K, Douglas M, Simon J, Biondo P, Badry G, Blackwell M, Martini B. Collaborative action of health care, legal, community, academic and other sectors to increase participation in advance care planning. Palliat Med 2020; 34(1S): 151.
  7. King S, Ghosh S, Douglas M, Brisebois A, Hall S, Brenneis C, Sia W, Heyland D, Fassbender K, Davison S, Simon J. OP37 The Alberta ACCEPT study: the impact of a system-wide advance care policy on communication, care planning and documentation. BMJ Supportive & Palliative Care 2019: 9(Suppl 2): A13.
  8. Nesari M, Douglas M, Ghosh S, Biondo P, Hagen N, Simon J, Fassbender K. OP53 A systematic review of economic evaluations of advance care planning: data limitations and ethical considerations. BMJ Supportive & Palliative Care 2019: 9(Suppl 2): A18.
  9. Douglas M, Fassbender K, Ries N, Wasylenko E, Biondo P, Simon J, Hagen N, Chamaschuk BS. OP71 ACP Alberta: collaborative action of health care, legal, government, community and academic sectors to increase participation in advance care planning. BMJ Supportive & Palliative Care 2019: 9(Suppl 2):A24.
  10. Xiao J, Simon J, Wityk Martin TL, Iversen S, Douglas M, Potapov A, Nesari M, Biondo P, Kanters A, Fassbender K. OP82 Identification, implementation and evaluation of indicators to monitor successful uptake of advance care planning in Alberta. BMJ Supportive & Palliative Care 2019; 9(Suppl 2): A27-A28.
  11. Nesari M, Douglas M, Xiao J, Biondo P, Hagen N, Simon J, Fassbender K. P18 Advance care planning (ACP) discussions: what do they really cost? BMJ Supportive & Palliative Care 2019; 9(Suppl 2): A34.
  12. Javed S, Simon J, Naheed U. Adopting Recommendations from South Asian Community to Help Improve Their Understanding of Advance Care Planning Concept. Canadian Journal of General Internal Medicine 2018; 13(1): 9.
  13. Simon J, Shaw M, Biondo P, Holroyd-Leduc J, Davison S, Wasylenko E, Ghosh S, Howlett J, Hutchison L, Booker R, Marlett N, Raffin S, Fassbender K, Hagen N. From Knowledge-to-Action: A Synthesis of Barriers and Facilitators to Advance Care Planning Policy Implementation Across a Healthcare System. Journal of Pain and Symptom Management 2016; 52(6): e13.
  14. Fassbender K, Holroyd-Leduc J, Biondo P, Stalker M, Potapov A, Wasylenko E, Jajszczok M, Simon J, Hagen N. Identification of indicators to monitor successful implementation of advance care planning policies in Alberta: a Delphi study. Journal of Pain and Symptom Management 2016; 52(6): e13-14.
  15. Potapov A, Simon J, Fassbender K. Implementation and Evaluation of Electronic Medical Orders for Goals of Care and End of Life. Journal of Pain and Symptom Management 2016; 52(6): e106–107.
  16. Chiu A, Fassbender K. The economics of advance care planning. Journal of Pain and Symptom Management 2016; 52(6): e107.
  17. Biondo P, Kalia R, Khan R, Marlett N, Shklarov S, Fassbender K, Simon J. Understanding Advance Care Planning within the South Asian community: a Qualitative Patient Engagement Research Study. Palliative Medicine 2016; 30(6): NP48.
  18. Chiu A, Fassbender K. The Economics of Advance Care Planning. Palliative Medicine 2016; 30(6): NP146.
  19. Fassbender K, Holroyd-Leduc JM, Stalker M, Potapov A, Biondo P, Simon J, Hagen N. Identification and implementation of indicators to monitor successful uptake of Advance Care Planning in Alberta: a Delphi study. Palliative Medicine 2016; 30(6): NP192.
  20. Potapov A, Simon J, Fassbender K. Implementation and evaluation of electronic medical orders for goals of care and end of life. Palliative Medicine 2016; 30(6): NP193.
  21. Kassam A, Douglas M, Cunningham S, Fassbender K, Simon JE, Davison S. Using the think aloud method to evaluate instrument design for a new survey of patient engagement with advance care planning (ACP).  BMJ Support Palliat Care 2015;5(Suppl 2):A3-A4. 
  22. Lee LD, Biondo PD, Davison SN, Simon JE. How do healthcare systems evaluate advance care planning initiatives?  Results from a systematic review. BMJ Support Palliat Care 2015;5(Suppl 2):A4. 
  23. Douglas ML, Fassbender K, Simon JE, Biondo PD, Wasylenko E, Ries NM. Integrating advance care planning into legal practice: Development of an ACP legal toolkit.  BMJ Support Palliat Care 2015;5(Suppl 2):A34. 
  24. Ogilvie LN, Fassbender K, Wasylenko E, Holroyd-Leduc J, Davison S, Ghosh S, Howlett J, Simon JE. Advance care planning and goals of care designation: Health care provider perspectives. BMJ Support Palliat Care 2015;5(Suppl 2):A44. 
  25. Shaw M, Simon JE. Characterising readiness for advance care planning (ACP): An interpretive descriptive study in supportive living.  BMJ Support Palliat Care 2015;5(Suppl 2):A53. 

Reports

1. ACP CRIO Program. ACP GCD Indicators: Standards Manual. Implementation of indicators to monitor successful uptake of Advance Care Planning in Alberta. Alberta, Canada: July 2016.