International Alliance for Pediatric Stroke (IAPS)
Family Tool Kit
If you have a newly diagnosed child and want a guide for starting on this journey or have been impacted by stroke in any way, please check out this Family Tool Kit by the International Alliance for Pediatric Stroke. Click here for more information: https://iapediatricstroke.org/family-tool-kit/
Jooay: Locate accessible leisure activities nearby
Jooay is a free app that helps children with disabilities and their families to locate leisure opportunities that are: close to where they are, accessible, suit their needs and abilities, match their preferences, can help them develop and participate in society. Jooay is also a community, to help parents, rehabilitation professionals, educators and community to connect, exchange, and learn from each other. Click here for more information: http://jooay.com/
International Alliance for Pediatric Stroke (IAPS)
The International Alliance for Pediatric Stroke (IAPS) is the leading pediatric stroke information and advocacy group. IAPS was established to facilitate collaboration among the many worldwide pediatric stroke communities. Our purpose is to effectively advocate for babies and children who have suffered a stroke. For more information please check the following link: https://iapediatricstroke.org/
ACH Resource Centre: Family to Family Connections
This program helps families connect with other families whose child has been diagnosed with a similar medical condition. Supportive family members receive orientation, support and encouragement to connect with a requesting family member who needs to talk, ask questions and receive support regarding the health and well being of a child or youth. For more information about this program check the following link: http://fcrc.albertahealthservices.ca/family/f2f/connect-with-another-family.php
As it is very important that families be carefully selected for matching, we would strongly encourage you to also contact our program to assist in the selection process.
ACH Neurosciences Adolescent Transition Program
This program is geared for teens aged 12-19 years old to assist them in their transition from being a child to becoming an adult. Team members are here to provide teens with information and support regarding transition topics and help them find information, resources and supports in the community. Becoming independent, graduating to adult care, day programs, education, transportation/driving, sexuality, social skills are just a few examples of the information provided on this website to assist youth and families with the transition process. Click here to find out more: http://fcrc.albertahealthservices.ca/transition/
Additional Online Support Resources
- Canadian Persons with Disabilities Discount Guide: The Ultimate List
- Creating possibilities for Cerebral Palsy
- Talking about Alternative Therapies for Cerebral Palsy
- Young stroke survivors (Calgary)
- Children’s Hemiplegia and Stroke Association
- Heart and Stroke Foundation of Alberta (HSFA) and Canada (HSFC)
- Canadian Stroke Network (CSN)
- A Family Guide to Pediatric Stroke
- Reaching for the Stars
- Child Neurology Foundation
- Pediatric Stroke Warriors
- International Pediatric Stroke Organization Kid Stroke Connections