Websites with information about Tourette syndrome and tics

Tourette Association of America

The TAA provides free resources about Tourette Syndrome, including: webinars, brochures, books, newsletters, DVDs, and videos.  It has an extensive library of recorded webinars providing information and support on many aspects of living with Tourette syndrome.

 

The Brake Shop

The Brake Shop focuses on Tourette syndrome, OCD and ADHD, and is provided by the Ontario Child & Parent Resource Institute. It consists of the Brake Shop Virtual Clinic, which includes four videos: All-Purpose Kit, Exposure & Response Prevention Toolbox, Self-Management Toolbox and Tic Management Toolbox. 

Tourette Canada

Tourette Canada provides information and resources about Tourette Syndrome, and offers a virtual peer support program for teens. Tourette Canada has local chapters in cities across Canada, providing local support for children, adults and families.

Comprehensive Behavioural Intervention for Tics (CBIT)

CBIT is a recommended behavioural treatment to help manage tics in children and adults.  The treatment is usually provided by a trained therapist, however online programs are becoming available for self-directed treatment.

Child using computer

TicHelper.com

TicHelper is an online, self-guided therapy program for families of children with Chronic Tic Disorder and Tourette syndrome. TicHelper is based upon Comprehensive Behavioral Intervention for Tics, or CBIT, and was developed by experts in Tourette Syndrome. The program is an 8-week intervention that involves education about tics, skill-based lessons, and daily practice. Cost is $150 US for the 8-week program and $10 US/month for subscription beyond the 8-week program.

Parent workbook

Managing Tourette syndrome - Parent Workbook

Managing Tourette syndrome: A Behavioural Intervention, Parent Workbook by Douglas W. Woods, Oxford University Press, 2008. The parent workbook allows parents to understand the principles of CBIT and follow along their child's treatment course. The workbook can be used to assist with homework given by the child's therapist over the course of therapy.

Adult workbook

Managing Tourette syndrome- Adult Workbook

Managing Tourette syndrome: A Behavioural Intervention, Adult Workbook by Douglas W. Woods, Oxford University Press, 2008. The adult workbook is used to complement therapist guided CBIT sessions, by providing additional information and exercises.

Robbie's Quick Adventure

Robbie's Quick Adventure

Robbie's Quick Adventure is a book for children and youth with Tourette syndrome, based on the Canadian Guidelines for the Evidence-Based Treatment of Tourette Syndrome. Please email us (julian.fletcher@ucalgary.ca) to have a free copy mailed to you.  

TS: 10 Secrets

Tourette Syndrome: 10 Secrets to a Happier Life

Tourette Syndrome: 10 Secrets to a Happier Life, by Michael S. Okun. The book draws from Tourette Association of Americas's Centre of Excellence Program and outlines new approaches to the development of treatment for people with Tourette Syndrome and tic disorders.

An Unlikely Strength

An Unlikely Strength

An Unlikely Strength: Tourette Syndrome and the Search for Happiness in 60 Voices, by Larry Barber, is a resource guide for families. It is based on intimate stories of how adults and children with Tourette Syndrome persevere, despite difficulties, with strength and hope.

A Family's Guide

A Family's Guide to Tourette Syndrome

A Family Guide to Tourette Syndrome, Edited by John Walkup and others. The book provides authoritative and up-to-date medical and scientific information about Tourette Syndrome.

Book title in a speech bubble on blue background

It's Not All About Swearing

The author, Dr Mandy M Barnett, who worked in the UK health service for 30 years, is the mother of two children who both have Tourette syndrome. Are you at your wits’ end with your child’s twitches, noises, and temper outbursts? Do you feel alone and a complete failure as a parent, with no clue what to do or where to start?
It doesn’t have to be that way.

 

Books for Children and Teenagers

Cartoon boy waving

Me and My Tourette's

Written by Sianna Stodd and Gemma Denham.

Hello, I'm Alfie and I have Tourette Syndrome. "Here, I explain what it's like to live with TS. What causes my tics and what can make them better or worse. Byr reading my story, you'll learn to understand the challenges I face everyday and more importantly, what you can do to help me and others like me. This book is a lovely and important book that comes from both the head and the heart, and it doesn't make light of the condition. It can be really hard to cope with. It gives us the facts. It shows us that the hardest part of living with TS can be the reactions of others. And its last words are perhaps the most important: "Always remember to be kind."

Cartoon image of boy

Tic Talk

The author, Dylan Peters, has lived with Tourette Syndrome more than half of his young life. Only four years old when he was first diagnosed with TS, Dylan is now nine and ready to enter the fourth grade. What he's learned about tolerance and acceptance during those five years, most of us fail to learn in an entire lifetime. In his own words, often humorous, always insightful, Dylan helps others, young and old, understand Tourette Syndrome and the enormous pressures this little, mysterious affliction places on those who have it and on those who love them. Illustrated by Dylan's friend, Zachary Wendland.

Two young people talking to each other

Why Do You Do That?

Med Head - My Knock-Down, Drug Out, Drugged-Up Battle With My Brain was written specifically for siblings of children with Tourette Syndrome, Why Do You Do That? is an age-appropriate source of information for children and adolescents aged 8 to 16. Uttom Chowdhury and Mary Robertson describe tics and Tourette's in clear, child-friendly terms and provide a simple explan ation of the biological causes. Other chapters focus on living with someone who has TS, associated features such as obsessive-compulsive disorder, attention deficit/hyperactivity disorder and aggression, and what siblings can do to help. The authors also offer practical tips on how to deal with issues such as problems at school and bullying.

Med Head in red font - black background

Med Head

How it does it feel to have a body that won't stop moving, to be really different from everyone else, to be made fun of every day, to be totally reckless, to never relax, to be shut out of everything, to break free and take control. This deeply personal account of Cory Friedman's intense struggles with Tourette's Syndrome and Obsessive Compulsive Disorder - as well as depression, anxiety, and alcohol addiction - is available for teen readers.

Adult Experiences

A young person swinging on a tree

A Day in the Life of Tourette Syndrome

Written by Troye Evers. Like many people with Tourette syndrome, Troye Evers' symptoms began early in his childhood, but he was not officially diagnosed until he was eighteen years old.  He remained in the closet about his diagnosis until his thirties, falsely attempting to pass off his symptoms as the result of bad sleep or a dry throat. After deciding he had enough, he penned a screenplay about his experiences that went on to win third place in the All Access Screen Writing competition. Two years later, he found himself voted on to the board of the Tourette Syndrome Association of New York City. Now using his influence and writing skills, he has collected the stories of seventeen other people, from all walks of life, living with Tourette syndrome.

Light shining in a forest clearing

I Am Myself

I Am Myself: A Woman Growing Up with Tourettes Syndrome. In this book Thersea Borrelli recounts her journey from a diagnosis of Tourette Syndrome in childhood, to a state of acceptance. At first, Theresa developed an attitude that was defensive, and critical of the doctors who treated her. Slowly, as a young adult, she began to assimilate, acknowledge and reconcile her disorder, for which there is no cure. Though about Tourette Syndrome, I Am Myself offers the reader a universal experience, relatable to the challenges that all of us face at one time or another. 

American Academy of Neurology

The American Academy of Neurology (AAN) Clinical Practice Guideline on the Treatment of Tics in People with Tourette syndrome and chronic tic disorders provides recommendations on the assessment and the treatment of tics.  Based on a systematic review of the literature, experts in Tourette syndrome from across the world created recommendations for health care practitioners who provide care to people with tics. The AAN has created a summary of the guidelines for patients and families.

Tic Attacks

The term ‘tic attack’ is often used to describe bouts of severe, continuous, non-suppressible and disabling tics which can last from a few minutes to several hours. Tic attacks in young people with Tourette syndrome or a chronic tic disorder (TS/CTD) may be a mixture of severe bouts of typical tics combined with movements that resemble tics but reflect the physical expression of severe anxiety.