Websites with information about Tourette syndrome and tics

Tourette Association of America

The TAA provides free resources about Tourette Syndrome, including: webinars, brochures, books, newsletters, DVDs, and videos.  It has an extensive library of recorded webinars providing information and support on many aspects of living with Tourette syndrome.

 

The Brake Shop

The Brake Shop focuses on Tourette syndrome, OCD and ADHD, and is provided by the Ontario Child & Parent Resource Institute. It consists of the Brake Shop Virtual Clinic, which includes four videos: All-Purpose Kit, Exposure & Response Prevention Toolbox, Self-Management Toolbox and Tic Management Toolbox. 

Tourette Canada

Tourette Canada provides information and resources about Tourette Syndrome, and offers a virtual peer support program for teens. Tourette Canada has local chapters in cities across Canada, providing local support for children, adults and families.

Comprehensive Behavioural Intervention for Tics (CBIT)

CBIT is a recommended behavioural treatment to help manage tics in children and adults.  The treatment is usually provided by a trained therapist, however online programs are becoming available for self-directed treatment.

Child using computer

TicHelper.com

TicHelper is an online, self-guided therapy program for families of children with Chronic Tic Disorder and Tourette syndrome. TicHelper is based upon Comprehensive Behavioral Intervention for Tics, or CBIT, and was developed by experts in Tourette Syndrome. The program is an 8-week intervention that involves education about tics, skill-based lessons, and daily practice. Cost is $150 US for the 8-week program and $10 US/month for subscription beyond the 8-week program.

Parent workbook

Managing Tourette syndrome - Parent Workbook

Managing Tourette syndrome: A Behavioural Intervention, Parent Workbook by Douglas W. Woods, Oxford University Press, 2008. The parent workbook allows parents to understand the principles of CBIT and follow along their child's treatment course. The workbook can be used to assist with homework given by the child's therapist over the course of therapy.

Adult workbook

Managing Tourette Syndome- Adult Workbook

Managing Tourette syndrome: A Behavioural Intervention, Adult Workbook by Douglas W. Woods, Oxford University Press, 2008. The adult workbook is used to complement therapist guided CBIT sessions, by providing additional information and exercises.

Robbie's Quick Adventure

Robbie's Quick Adventure

Robbie's Quick Adventure is a book for children and youth with Tourette syndrome, based on the Canadian Guidelines for the Evidence-Based Treatment of Tourette Syndrome. Please email us (julian.fletcher@ucalgary.ca) to have a free copy mailed to you.  

TS: 10 Secrets

Tourette Syndrome: 10 Secrets to a Happier Life

Tourette Syndrome: 10 Secrets to a Happier Life, by Michael S. Okun. The book draws from Tourette Association of Americas's Centre of Excellence Program and outlines new approaches to the development of treatment for people with Tourette Syndrome and tic disorders.

An Unlikely Strength

An Unlikely Strength

An Unlikely Strength: Tourette Syndrome and the Search for Happiness in 60 Voices, by Larry Barber, is a resource guide for families. It is based on intimate stories of how adults and children with Tourette Syndrome persevere, despite difficulties, with strength and hope.

A Family's Guide

A Family's Guide to Tourette Syndrome

A Family Guide to Tourette Syndrome, Edited by John Walkup and others. The book provides authoritative and up-to-date medical and scientific information about Tourette Syndrome.

American Academy of Neurology

The American Academy of Neurology (AAN) Clinical Practice Guideline on the Treatment of Tics in People with Tourette syndrome and chronic tic disorders provides recommendations on the assessment and the treatment of tics.  Based on a systematic review of the literature, experts in Tourette syndrome from across the world created recommendations for health care practitioners who provide care to people with tics. The AAN has created a summary of the guidelines for patients and families.