Hereditary Hemorrhagic Telangiectasia (HHT) Clinic

The Calgary HHT Clinic was established in 2017 to provide state of the art multidisciplinary care for patients with HHT from central and southern Alberta. We work closely with the Edmonton HHT Centre of Excellence. 

The HHT Clinic sees patients with possible HHT and family members of patients with confirmed HHT to establish a diagnosis and treatment plan. The HHT Clinic co-ordinates care with other specialists including Otolaryngology, Medical Genetics, Gastroenterology, Interventional Radiology, Hepatology, Hematology, Neurology, and others as needed. The Calgary HHT Clinic provides day-to-day management of over 100 people with HHT.

The Calgary HHT Clinic is located at the South Health Campus hospital, in the Pulmonary Diagnostics Unit

6^th Floor, Outpatient Tower
South Health Campus
4448 Front St SE
Calgary, AB, T3M 1M4

Phone: 403-956-2800
Fax: 403-956-2848

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is a genetic disorder that results in malformed blood vessels throughout the body. The abnormal blood vessels can be small (telangiectasias) or large (arterio-venous malformations) and can occur in any part of the body. Most patients experience frequent nosebleeds from telangiectasias in the nasal passages. When the abnormal blood vessels occur in major organs such as the brain, lung, liver, stomach or bowel, people with HHT can have serious complications. There are treatments available to manage HHT and to manage iron deficiency or anemia that can develop from frequent nosebleeds or bleeding from the stomach or bowel. Everyone with HHT should be screened to determine if HHT is affecting their major organs. 

HHT is a hereditary disorder, meaning it can be passed down through generations in a family. All first-degree relatives of an individual with HHT should be screened to determine if they also have HHT. HHT occurs in about 1 in every 5000 Canadians. 

There is excellent detailed information about HHT on the Cure HHT website: www.curehht.org

The Calgary HHT Clinic welcomes medical trainees from all levels (medical students, residents, and sub-specialty fellows). Please contact Dr. Fell’s administrative assistant, Ruby Leachman, (ruby.leachman@ahs.ca) to request individual clinics and/or an elective block. 

• Cure HHT: The International HHT Foundation
• Canadian HHT Foundation
• Edmonton HHT Centre of Excellence
• Toronto HHT Centre of Excellence
• Epistaxis Severity Score
• HHT Diagnosis and Management Guidelines
• Second International HHT Guidelines (PDF)

A referral is required from a registered health care practitioner (physician, physician or clinical assistant, or nurse practitioner) for patients or families new to the HHT Clinic, or for individuals who have suspected HHT. 

Referrals may be made through Connect Care or eReferral for practitioners in the province of Alberta. 

Other health care providers may fax referrals to Pulmonary Central Access and Triage (PCAT):

PCAT Phone: 403-943-4718
PCAT Fax: 403-592-4201